My name is Carlos Carballo and I am a Clinical Research Coordinator at the Jules Stein Eye Institute at UCLA. I came across your state’s website and have become familiar with the services you provide for the blind & visually impaired citizens of the state of North Carolina.
I would like to ask for your support in publicizing our nationwide, web-based eye research study. Currently, we are recruiting participants for the “Study on the Genetics of Age-Related Maculopathy (GARM II)”. It has been my experience that state agencies are limited in what they can post on their government websites. Is there any other way where blind & visually impaired individuals who take part in your services be distributed the information on our study?
If so, what would you require (or prohibit)? I have attached a flyer that we are currently using to make people aware of the study. I can send (via direct mail) several more hard/paper copies for those who may be interested in the form of text pads. Below you’ll find a brief description of our study:
The Jules Stein Eye Institute at University of California, Los Angeles is seeking clinical research volunteers. Dr. Michael B. Gorin is conducting a nationwide study of genetic and other risk factors that contribute to the development of age-related macular degeneration (also known as Age-Related Maculopathy). Individuals or members of their family may be eligible to participate in this observational study (this is not a treatment trial) which does not require that individuals travel to UCLA, but allows individuals to participate through a confidential and secure website. Individuals will be required to give 1 saliva sample or have their blood drawn (20 ml). Photographs of the retina will be covered by the study.
The study is looking for:
- Individuals from 49 to 65 years old who have/had a least one parent with macular degeneration. Spouses or partners will be included.
- The parent(s) who have Age-Related Macular degeneration or have a first-degree relative with the disease (siblings).
If an individual wishes to learn more about this study, they can go to the following website and read about the study with complete anonymity (and even send questions to the research coordinators).
https://jseiclinres.jsei.ucla.edu/garm/
UCLA IRB Number: 08-11-008-02
Expiration Date: June 22, 2011
Feel free to contact me or one of our research coordinators TOLL-FREE at 1(800)286-8581 for more information. Thank you for your time and the work you do.
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Carlos Carballo
Clinical Research Coordinator
Retinal Disorders and Ophthalmic Genetics Division
David Geffen School of Medicine at UCLA
Jules Stein Eye Institute
100 Stein Plaza, DS-2-545
Los Angeles, CA 90095-7000
Phone: (310)794-1250
Fax: (310)794-5701
https://jseiclinres.jsei.ucla.edu/garm/
carballo@jsei.ucla.edu
Angelo Sonnesso M.A. M.S.
Social Worker III
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